Saturday, April 3, 2010

so much to say

i cant belive how long its been since i was on here last. so much has happened. baybe is going through so much, right now she is getting a catheter. from what i have heard (which isnt a lot) is that she held her pee in for so long that it went back up in to her kidneys. plus it stretched her bladder to twice the size a it should be. i think thats pretty scary. i came up to ohsu last night, and il be leaving a little later. i was going to go to my grandpas for easter morning, but he had to go the hospital cause he hurt his knee... AGAIN. this will be baybes second easter in the hospital, and the other time was her first easter. i just hope she will be out soon. she woke up this morning crying/talking and then a nurse came in to wake everyone up. taylor is being rude to everybody, but i guess thats normal:)today before me and taylor leave we are gonna watch some movies. im so so SO happpy we got to come up her to see baybe. i could tell she was happy to see us. right now shes whining because the nurse i working on her. she is finally awake. when we got here last night she was dead asleep, and would barely open her eyes. but thats ok. me and taylor have managed to keep ourselves busy, by going to the kids room and making baybe some posters. mom put them on the outside of the door. i just feel so bad that baybe has to stay here longer. i can t even imagine how bored she must be. but thats why we're here. me and taylor both have been playing with her. i cant wait for her to come home to all of her toys and stuff. i have to go because we are gonna clean. il try to get back on soon. bye.

Wednesday, November 18, 2009

tough times, and tougher times

i have much to say. first of all.... well i should the first thing that happend this week, was that one of my twin brother guinea pigs dies, and I am very upset about that, but I burried him and gave him a nice little ceramony. Second thing that happed this week was that Baybe got hospitalized on sunday the 15th. Ever since then me and mom have been talking on the phone, and of course chatting on myspace. So for now i am being bounced around with different siblings, and packing and unpacking alot!! haha. but so far all I understand about baybes situation is that she has had pneumonia, and then all of a sudden mom had to rush baybe in to the hospital, and i went with my aunt and taylor went with his dad. my grandma is now telling me the plan for the rest of the week, my grammas brother picks me up tommarow, and takes me to his house, then my other gramma will come home and we will do some stuff, then my dad will come get me at around 9 to 10 pm, then dad takes me to school the next morning, gramma is coming to my play (I GOT THE LEAD AS CINDERELLA! YAY!) then shewill take me home, and we will wait for my dad. lol. confusing? so now i gotta go. me and momo (grandma) are going to dinner. un

Saturday, November 7, 2009

finally

well we finally have peace and quiet in our life. we are pretty settled down, even though mom is still stressing about thw whole moving thing. Baybe was not feeling not so good the couple days after halloween, but yesterday she started being really noisey and happy. WE GOT THE WHEEL CHAIR!!!! yay!! well i guess its not really a wheel chair. its more of a.... SUPER FANTASTIC SPECIAL AWESOME STROLLER! lol. the only one teensy tiny problem? no cupholders. mom gets a coffe before we go almost ANYWHERE. so i have been the official drink carier wherever we go. Plus everyone i got my twitter account all set up so if you have one, im listed as FABU_LASS and u should all look me up and follow me. mom is right now getting dinner and movies (which both those things make for a good night) and baybe has drifted off to the sound of the keyboard. I probably would to, if i was in her position. haha. in her sleep she must be doing somthing awesome, because she just made a cute little "haaaa" noise. woah. i just looked over at her and she was staring at me. kinda weird... anyway, its been a short day and im TI-RED. il try to blog again as soon as either i remember again, or my mom reminds me again. lol.

Friday, October 30, 2009

Hello everyone! happy halloween. Today I got to go to baybes play group at riverside elementary school. it was very cool, and there were two other disabled boys that were baybes age. they were both adorable. there names were sammy and carter. but mostly they just playrd with insruments and messed around. it was all very cute. Tonight me and my mom are throwing a halloween party that starts at 5 (im so excited!) and baybe is wearing the cutest puppy dog costume. she has sleepd all day long, and isnt changing that any time soon. C: well I got to go decorate a little more! have a great halloween.

Tuesday, October 27, 2009

=D

well theres not a lot going on. mom and baybe are both doing pretty good. I am great, I joined a dance class and ask anyone I LOVE it. baybe was recently hospitalized for about... maybe 5 days? i didnt keep track very well, but she was in because they were pretty sure she had swine flu, but it turned out to be just a virus. Baybes good now though. right now mom and her friend are going to go out, and me and baybe are going to sleep. she sees the screen on the computer, and is waving. I guess shes saying hi to you all. thanks to everyone for letting me share my thoughts about our situation. it really helps to be able to tell everyone about my strugles and thoughts. I am also happy about baybes meds, because now she is back on the liquid valporic acid, instead of the pill. the pill was so much harder! moms in a good mood everyday and that means everyones in a good mood! The only problem right now is that..... WE HAVE TO MOVE! =,( really dont want to but we have to move to a one story house for baybes wheelchair. Well I think im going to go snuggle with baybe now. she so cute when shes tired! bye everyone!

Monday, September 28, 2009

Hello! I know I have not blogged in a while. So much has been going on lately, that I couldn't. So one of the first major things, was our Internet got turned off. Then mom quit doing her school stuff, so she could spend more time with me, Taylor, and Baybe. Then mom had some problems. She first had appendicitis, then she was in the hospital for about three days, because her surgery had so much impact on her ability to care for herself.When she finally came home, it was close to my birthday. We had planned a HUGE party. But since she couldn't barely walk, I had three friends over and two girls spent the night. It was fun. So Babyes been doing great. shes upstairs today, with mom because she ws getting the internet hooked back up, Babyes happy, and waving and making all sorts of noises. right now mom has the piano keyboard on the ground and Baybe is hitting it. I think Shes been responding well to me. She knows who I am, and will smile at me. She can always make anyone who's having a rough day smile. I'm so glad that we've been able to relax and get everything back into order here. But sadly we have to move in about three weeks. We have to move to a one story house. My mom is making sure we stay in Milwaukee though. I am now in middle school, and oddly its not as hard as I thought it would be. Baybe will be getting her wheel chair soon, that being the reason we have to move to a one story. I am glad to make the adjustment for Baybe. She is what is making our life so happy in rough days.